Download Medifocus Guidebook on: Sjogren's Syndrome
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Medifocus Guidebook on: Sjogren's Syndrome
Download Medifocus Guidebook on: Sjogren's Syndrome
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Product details
Paperback: 242 pages
Publisher: CreateSpace Independent Publishing Platform (July 6, 2018)
Language: English
ISBN-10: 1981290893
ISBN-13: 978-1981290895
Product Dimensions:
8 x 0.6 x 10 inches
Shipping Weight: 1.1 pounds (View shipping rates and policies)
Average Customer Review:
3.8 out of 5 stars
13 customer reviews
Amazon Best Sellers Rank:
#937,167 in Books (See Top 100 in Books)
Very limited information - super basic dry eye, dry mouth stuff; short on current research and serious complications of Sjogren's; would not recommend to anyone who really wants answers. You can get all this book's superficial information on line without paying for it.
Good info for people who suffer from SS.
I have Sjogrens Syndrome and have the hard copy of the book. The book is very informative and helpful. I really love the Kindle Edition, it is so much easier to search and read in bed, where I do most of my reading.
I found this book very helpful after being diagnosed with primary Sjogren's Syndrome.
I was recently diagnosed with Sjogren's Syndrome and find this book is loaded with much needed information. It goes into great detail on every aspect of Sjogren's. Thanks for having it available on Kindle.
I have a number of reference books on Sjogren's Syndrome, but was looking to see if there was anything recently published with updated information. Since this is relatively new (published in 2010) and had a couple of 5-star recommendations, I ordered it. I was disappointed. Although the book does contain very good information, it also contains a lot of generic information not specifically related to Sjogren's, and it seemed more like a compilation of resources for academicians or physicians than a reference guide for patients or laypersons. And it was easy to breeze through in about an hour and didn't contain much new. If you are looking for a single reference book on Sjogren's, this is an excellent good starting point but it is not the most comprehsive guide available. Much of the book consists of links to abstracts of more than articles in medical journals. I suppose this would be of great use if you were doing academic or clinical research, but it is really of minimal use for an individual trying to deal with Sjogren's symptoms.The book is divided into six sections:1. Background information2. The intelligent Patient Overview3. Guide to the Medical Literature4. Centers of Research5. Tips for Finding and Choosing a Doctor6. Directory of OrganizationsSection 1, background information, tells you about how MediFocus guidebooks work generally, and provide instructions on how to order full-length articles referenced in the abstracts. Nothing at all specific to Sjogren's.Section 2, Intelligent Patient Overview, provides excellent information about Sjogren's -- how it is diagnosed, symptoms, current standards of care, and treatment options. I felt that the discussion of treatment options was very thorough, and referred to specific medications and product names. I also found the information on comorbidity very, very interesting -- For example, about 5% of patients with Sjogrens will be diagnosed with lymphoma at some point, and the rate is higher for individuals with primary Sjogren's. Most Sjogren's patients will experience inflammatory arthritis. The book which cusses the prevalence of tooth decay, headaches, skin problems, and other issues for Sjogren's patients. 9 to 75 percent of Sjogren's patients have pulmonary issues. 10% of Sjogren's patients have kidney/bladder issues. 10 to 30 percent of Sjogren's patients have neurologic symptoms. And so on. Very, very interesting. The book also explains how different medications function and when they are contraindicated. For example, it discussed Salagen and Evoxac, both medications used to help stimulate salivary flow. I had always understood them to be more or less interchangeable, with the same function. But this book explains how they work differently, and which one might work better for different individuals. This section was also interesting because it discussed drugs being tested in other countries that are not yet used in the US, and it discussed some drugs I've never heard about that I may discuss with my doctor.Section 3, Guide to the Medical Literature, provides links to abstracts of about 130 different articles, mostly scholary publications with titles like "Use of methotrexate in patients with systemic lupus erythematosus and primary Sjogren's syndrome" and "Neuroelectrostimulation in treatment of hyposalivation and xerostomia in Sjogren's syndrome: a salivary pacemaker." Many published in international journals. Without access to the underlying articles, I found this whole section to be of little value. And many of the articles, not surprisingly, appeared to be reports on results of clinical trials and the like -- and would probably not make a lot of sense for a layperson. This seems to take up about half of the book.Section 4, Centers of Research, provides a "unique directory of doctors, researchers, medical centers, and research institutions" with a particular interest in Sjogren's. Essentially, it is a list of doctors, universities, and hospitals with some purported interest in Sjogren's. There was no one listed in my state or any of the adjoining (Midwestern) states I checked, so I found this to be of little value.Section 5, Tips on Finding and Choosing a Doctor, had absolutely no specific information on Sjogren's. In fact, it seemed to be particularly directed to cancer patients. And it was completely generic -- I'm guessing that this identical chapter goes in any MediFocus publication, regardless of the disease being addressed. One interesting point -- it mentioned a Harvard study indicating that less experineced physicians often provide better care (or are perceived to provide better care) than more experienced physicians, so don't avoid doctors who haven't been practicing long because of concerns about the quality of care. This was interesting to read, but nothing that you couldn't find a thousand other places.Section 6, Directory of Organizations, purports to list organizations with a particular interest in Sjogren's. This is useful, but nothing that couldn't be found with a quick internet search.Overall, chapter 2 of this book did contain useful, interesting information, but I felt like the rest of the book would be of limited value to a layperson.
If you have sjogren's this book is a must to have. It informed me of things the doctors never bothered to tell me about the disease. I didn't have a clue what sjogren's was till I bought this book.
useful to an extent.
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